Eczema affects nearly 20 percent of children across the UK. With self-management being a core part of combating the condition, the Eczema Mindlines project provides a range of videos, conferences, workshops and more to provide sufferers with the help they need.
Atopic eczema is a long-term relapsing skin condition and is among the fifty most burdensome diseases worldwide. In the UK, eczema affects approximately 20 percent of children and between 2-10 percent of adults; 97 percent of cases are treated in primary care.
Effective eczema care requires diligent self-management. The cornerstone of treatment is regular, and consistent use of topical emollients and intermittent use of topical corticosteroids as required. Treatment failure is common and wastage of prescribed preparations high, while primary care consultations can be unsatisfactory for both patients and practitioners.
The aim of this study is to assess if new methods of sharing knowledge about the treatment of eczema which change practitioner and lay mindlines (collectively reinforced, internalised tacit guidelines) can improve experience and outcomes of primary care consultations and self-management practices. This work is funded through the National Institute for Health Research, Knowledge Mobilisation Research Fellowship programme.
How is the research carried out?
This study has four phases:
- Observation of consultations and interviews with lay people with eczema and practitioners (GPs, nurses, health visitors, community pharmacists, pharmacy counter assistants) to understand how eczema mindlines develop;
- Interviews with a wider group of lay people with eczema and practitioners to confirm the mindlines developed in Phase One are representative of their experiences;
- Working with stakeholders to design and deliver interventions to improve knowledge sharing in eczema;
- Interviews and analytics to see how the intervention impacts in practice.
Models of lay and practitioner mindlines have been created.
- Fiona recently gave a presentation on her research on improving primary care eczema - the video can be viewed here.
- Open access
- SAPC Conference
Online creative music sessions
British orchestra Sinfonia Viva, writer Hazel Gould and songwriter Abimaro Gunnell have teamed up for a series of online music workshops for children with eczema (aged five to ten). Gould and Gunnell will host creative music sessions throughout January, working with children to write a song that will then be recorded by Sinfonia Viva.
The resulting song will then feature in a short film that will be shared with schools to help raise awareness around living with the dragon.
It will begin with a parents / grown-ups' meeting on Wednesday 13 January (from 7.30-8.30pm), with creative music sessions taking place every following Saturday throughout January, from 10-11am.
The film will then premiere on Saturday 27 March at 10am.